Helpful Resources
Trusted, easy-to-use resources to help you navigate diagnosis, treatment, and life around it.
Get An Expert Opinion
NUT carcinoma is rare, so it’s important to get an opinion from a center that has treated this disease before.
Your physician can help by contacting experts at these institutions.
The Dana-Farber Cancer Institute NUT Carcinoma Team
The world-leading research and clinical team for NUT carcinoma, where NUT carcinoma was first discovered and characterized in the early 2000s. Working closely with Brigham and Women’s Hospital pathologist Christopher French, MD, who oversees the International NUT Carcinoma Registry and played a pivotal role in the discovery of the NUT fusion oncogene, the team leads groundbreaking research and provides expert clinical care for this rare and aggressive cancer.
UNC Lineberger Comprehensive Cancer Center
UNC Lineberger, based at the University of North Carolina at Chapel Hill, is the state’s only public comprehensive cancer center and one of just 57 in the nation designated by the National Cancer Institute. Rated “exceptional” by the NCI, the center brings together top physicians and scientists to advance cancer prevention, detection, treatment, and innovative clinical trials.
Keck Medical Center of University of Southern California
Spanning research, education, patient care, and community engagement, the Keck School stands at the forefront of progress in healthcare and the promotion of health for all.
The University of Texas MD Anderson Cancer Center
The University of Texas MD Anderson Cancer Center is one of the world’s most respected centers devoted exclusively to cancer care, research, education, and prevention. Since its founding in 1941, MD Anderson has remained steadfast in its mission: to eliminate cancer in Texas, the nation, and the world through outstanding programs that integrate patient care, research, and education.
Memorial Sloan Kettering Cancer Center
Memorial Sloan Kettering Cancer Center (MSK) is one of the world’s leading institutions for cancer treatment and research, committed to delivering compassionate care and advancing discoveries that change lives. Founded in 1884, MSK has built a legacy of innovation, pioneering approaches that have shaped modern oncology and improved outcomes for patients around the globe.
University of Pittsburgh Medical Center
UPMC is an American integrated global nonprofit health enterprise that has 100,000 employees, 40 hospitals with more than 8,000 licensed beds, 800 clinical locations including outpatient sites and doctors’ offices, a 3.8 million-member health insurance division, as well as commercial and international ventures.
John Hopkins Medicine
Johns Hopkins University is a private research university in Baltimore, Maryland, United States. Founded in 1876 based on the European research institution model, Johns Hopkins is considered to be the first research university in the U.S.
Young Adult Cancer Organizations
The young adult cancer community (typically ages 15-39) faces unique challenges around fertility, career disruption, insurance, and social isolation that these organizations specifically address.
The largest young adult cancer advocacy organization, offering programs, support groups, and resources for ages 15-39.
Teen Cancer America is a patient and research advocacy organization that improves the experience, outcomes and survival of teens and young adults with cancer by providing specialized facilities and programs designed specifically for them in hospitals throughout the United States.
Young adult cancer coalition providing support, advocacy, and community.
Founded by Andrew McMahon, focuses on quality of life programs for young adults with cancer.
Support community specifically for young women with cancer.
Hospital-Based Young Adult Programs
Adolescent and Young Adult (AYA) programs provide specialized, age-appropriate care designed specifically for patients who are navigating cancer treatment during critical life stages.
Teen & Young Adult (TYA) Programs at major cancer centers like:
Financial Assistance
Many communities offer cancer support programs with financial aid, and these—along with other assistance options—may help alleviate the economic burden of cancer treatment for young adults facing medical expenses, transportation costs, and other treatment-related financial challenges.
Support & Community
Support and Community programs online or in-person specific to young adults
Highlights rare genetic cancers in young adults, focusing on awareness and overcoming challenges.
Support programs and advocacy (also helpful for US families).
National organization providing free, professional support services.
Additional Resources
Fertility Preservation Support
Ask your medical care team about local fertility preservation options in your area, we’ve listed some national organizations here.
Financial assistance and resources for fertility preservation.
Education and support around fertility issues.
Research & Advocacy
Research and advocacy organizations with an adolescent and young adult focus.
Includes AYA research protocols
Research advocacy
Research advocacy
Research advocacy