NUT Carcinoma REGISTRY
The International NUT Carcinoma Registry plays a critical role in advancing understanding and treatment of this rare cancer.
Why Enrollment is Important
Enrollment in the registry allows for the collection of clinical data and tissue samples.
These tissue samples form the foundation of a tumor bank that gives scientists the materials they need to make breakthroughs in understanding and treating this rare cancer.
Joining the Registry is Safe and Easy
Consent is signed by the patient
Cells are collected from the patient
Cells are placed in a biobank
Safely stored at Dana Farber Cancer Institute
Who Can Join?
The registry welcomes all NUT carcinoma patients regardless of age, location, or specific tumor characteristics.
Anyone diagnosed with NUT carcinoma can be enrolled, whether by the patients themselves, their families, or their healthcare providers.
How to Get Started
Patients, families, or physicians can begin the enrollment process by visiting the International NUT Carcinoma Registry website. Forms can be downloaded from the website, and completed forms should be sent to the registry team at Dana-Farber Cancer Institute. For assistance with enrollment, contact information is available on the registry website.
Your Samples Create Progress in These Ways:
- Study the unique genetic and molecular characteristics of each tumor
- Develop laboratory models that accurately represent the disease
- Test potential new therapies before moving to clinical trials
- Identify patterns in how different tumors respond to treatments
- Understand the mechanisms that drive tumor growth and resistance
- Discover biomarkers that might predict treatment response
- Create personalized treatment approaches based on specific tumor features
Enroll Today
Visit the Registry website to get the necessary forms and get the process started.